National Conference on Blood Disorders in Public Health and the GSCDN Conference

Date: Mar 12, 2012 - Mar 16, 2012
Location: Atlanta

Agenda for the Global Sickle Cell Disease Network Conference

Wednesday, March 14, 2012 - Thursday March 15, 2012
Atlanta, Georgia

Day 1 - Wednesday, March 14

2 – 4 p.m.   

Part 1: Plenary; Room: Berlin/Copeland/Foster

Chair:

Kwaku Ohene-Frempong,
Children’s Hospital of Philadelphia, Philadelphia, USA and Sickle Cell Foundation of Ghana

2 p.m.

The Global Sickle Cell Disease Network: Progress and Plans
Isaac Odame, The Hospital for Sick Children, Toronto, Canada

2:20 p.m.

Global Sickle Cell Disease Network: Partnerships with International Agencies
Jacques Elion, Robert Debré Mother & Child University Hospital, Paris, France and 
Mohamed Cherif Rahimy, National Sickle Cell Disease Center, Cotonou, Benin

2:40 p.m.

Focus on Regional Networks: REDAC and CHARTA
Solomon Ofori-Acquah, Emory University, Atlanta USA

3 p.m.

Focus on Regional Networks: CAREST
Marvin Reid, University of the West Indies, Mona, Jamaica

3:20 p.m.

Discussion

3:40 p.m.   

Break

4 – 5 p.m. 

Part 2: Oral Abstract Presentations; Room: Berlin/Copeland/Foster

Chair:Jacques Elion, Robert Debré Mother & Child University Hospital, Paris, France
Presentation TimeAbstract #1st AuthorTitle
4 p.m.GC-0-01Frédéric B. Piel, Simon I. Hay, Thomas N. WilliamsThe Increasing Burden of Sickle Cell Anaemia: A Quantitative Approach
4:15 p.m.GC-0-02Nandakumar Menon
Vivek Nimgaonkar, Hari Prabhakar, Lakshmanan Krishnamurti
Feasibility of a Comprehensive, Integrated Medical Home for Patients with Sickle Cell Disease in a Remote Autochthonous Tribal Population in Southern India
4:30 p.m.GC-0-03Dipty Jain, Aishwarya Arjunan,  Lakshmanan KrishnamurtiClinical Events in Individuals with Sickle Cell Disease at a Single Center in Nagpur, India: Is Sickle Cell Phenotype in India Truly Milder?
4:45 p.m.GC-0-04Sharon E. Cox, Julie Makani, 
Scott D Grosse, Frédéric B. Piel
Attributable Fraction of Under 5 Mortality from Sickle Cell Disease in Africa: Estimates for Tanzania

     

5 – 6 p.m.

 Part 3: Plenary; Room: Berlin/Copeland/Foster

Chair

Jacques Elion,Robert Debré Mother & Child University Hospital, Paris, France

5 p.m.

International Partnerships for Program Implementation: Ghana
Kwaku Ohene-Frempong, Children’s Hospital of Philadelphia, Philadelphia, USA & Sickle Cell Foundation of Ghana

5:30 p.m.

Operational successes and challenges of a pilot newborn screening program in the Republic of Angola
Patrick McGann and Russell Ware, Baylor College of Medicine, Houston, USA

6 – 8 p.m.  

Reception and Poster Viewing


Day 2 - Thursday March 15

8 – 9:30 a.m. 

Part 4: Oral Abstract Presentations; Room: Berlin/Copeland/Foster

ChairDipty Jain, Clinical Epidemiology Unit at Government Medical College, Nagpur, India
Presentation TimeAbstract #1st AuthorTitle
8 a.m.GC-0-05Cyntia Cajado, Bruno A. V. Cerqueira, Wendell Vilas-Boas, Magda O. S. Carvalho, Marco Salvino, Angela Zanette,
Isa Menezes Lyra,  Mitermayer G. Reis,Marilda S. Goncalves
Polymorphisms of Toll-like Receptor, Myeloperoxidase and Fc Gamma Receptor IIa Genes in Children with Sickle Cell Anemia
8:15 a.m.GC-0-06Yutaka Niihara, Henry Macan,
James R. Eckman, Han Koh,
Melanie L. Cooper, Thomas R.Ziegler, Rafael Razon, Kouichi R. Tanaka,
Cage S. Johnson
L-Glutamine Therapy For Sickle Cell Anemia: Multi-Center Randomised Double Blind Phase II Study
8:30 a.m.GC-0-07Lesley King, Susanna Ali, Marvin ReidAre we on Target? Mortality in Jamaica Children with SCD
8:45 a.m.GC-0-08Adekunle AdekileKuwait Sickle Cell Disease Registry
9 a.m.GC-0-09Kathy Chyjek, Suzanne van Meer,
Hawja Kim, Anastassios Koumbourlis,
Folasade Ogunlesi, Lewis L Hsu
A Disparity within a Disparity?  - Pilot Study Shows Higher Rates of Acute Chest Syndrome Correlate with Regional Lower Household Income and Asthma in Sickle Cell Disease 
9:15 a.m.GC-0-10Brenda F. MerriweatherIncidental Finding:  Adult Sickle Cell Readmissions are Reduced with the Implementation of the PAST (Proactive and Aggressive Sickle Cell Disease Treatment) Model
9:30 a.m.GC-0-11Ruby Khoury, Dima Karam, Sarah Keyrouz, Samar Muwakkit, Raya Saab,
Mariam Arabi, Fadi Bitar,
Miguel R. Abboud
The Characteristics and Cost of Care for Pediatric Patients with Sickle Cell  Disease at the Children's Cancer Centre of Lebanon
9:45 a.m.GC-0-12KA Anie, MJ Treadwell, A Grant, E Tetteh, M Lamptey, Asafo, S Ofori-Acquah,
K Ohene-Frempong
Developing a Counselor Training Program for Sickle Cell Disease Newborn  Screening in Ghana: Formative Research

 

10 – 10:30  a.m.

 Break

10:30 – Noon

Part 5: Workshop Plenary; Room: Berlin/Copeland/Foster

Chair:

Léon Tshilolo, Centre Hospitalier Monkole in Kinshasa, DRC and the Centre de Formation et d’Appui Sanitaire

10:30 a.m.

Natural History and Newborn Screening
Kwaku Ohene-Frempong, Children’s Hospital of Philadelphia, Philadelphia, USA & Sickle Cell Foundation of Ghana

10:45 a.m.

Infections in SCD
Stephen Obaro, College of Human Medicine, Michigan State University, USA

11 a.m.

Hydroxyurea Therapy in Low-Income Regions
Russell Ware, Baylor College of Medicine, Houston, USA

11:15 a.m.

Genetic and Environmental Factors that Govern Phenotypic Diversity
Adekunle Adekile, Faculty of Medicine, Kuwait University, Kuwait

11:30 a.m.

Final Charge to Working Groups and Discussion
All working groups should be focussed on key research needed to implement cost-efficient, evidence-based programs in developing countries, including what is needed in regional clinical and research centres.
Isaac Odame, The Hospital for Sick Children, Toronto, Canada

Noon – 1 p.m. 

 Lunch Break

1 – 3 p.m.  

Working Groups


Group 1:

Kern Room

Newborn Screening and Natural History

Group 2:

Porter Room

Infections in SCD

Group 3

Rogers Room

Hydroxyurea Therapy in Low-income Regions

Group 4:

Bernstein Room (lobby level)

Genetic and Environmental Factors that Govern Phenotypic Diversity

3 – 3:30 p.m.

Break


3:30 – 6 p.m.

Part 6 Final Plenary; Room: Berlin/Copeland/Foster

Chair:

Alvin Zipursky, The Hospital for Sick Children, Toronto, Canada

3:30 p.m.

Summary of Group 1 Discussions
Kwaku Ohene-Frempong, Children’s Hospital of Philadelphia, Philadelphia, USA & Sickle Cell Foundation of Ghana

4 p.m.

Summary of Group 2 Discussions
Thomas Williams, KEMRI- Wellcome Trust Research Programme, Kilifi, Kenya

4:30 p.m.

Summary of Group 3 Discussions
Sharon Cox, Muhimbili Wellcome Programme, Dar es Salaam, Tanzania
Russell Ware, Baylor College of Medicine, Houston, USA

5 p.m.

Summary of Group 4 Discussions
Adekunle Adekile, Faculty of Medicine, Kuwait University, Kuwait

5:30 p.m.

Wrap Up and Next Steps
Isaac Odame, The Hospital for Sick Children, Toronto, Canada

6 – 8 p.m.   

 Joint Meeting with WISSH and Poster Viewing